Jen’s Terrible, Horrible, No Good, Very Bad Day

Thing One

 

The first incident wasn’t all that bad – almost routine in fact. I was at a meetup type gathering and most of the attendees were strangers. About forty-five minutes into the conversation, I suddenly realized a segment of the group didn’t realize I’m blind. (My guide dog, Camille, was out of harness at my feet.) “Um, you know I’m blind, right?”

“Oh, no we had no idea.” I could have scripted the next part. “You don’t seem blind.” There I go again not living down to low expectations of my behavior.

 

Thing Two

 

The next was far more ominous. On a “no destination” walk with my dog, I crossed a street and a man asked where I was going. I knew the street dead-ended somewhere, so I asked if I could keep going or not. His answer was not, so I asked if the street we were on met up with another street. “No, you have to go back a couple of blocks.” Great.

I got my foot caught up in a plastic bag that was in the gutter and had some trouble untangling myself, then I took off. About a block along my route, the man calls from behind me, “Turn there.” or something. He had *followed* me. Followed.

 

Thing Three

 

I next ventured to the Transgender Day of Empowerment ceremony at the local LGBT center because a friend was receiving an award. Upon arriving in a very crowded auditorium, I was trying to convince my guide dog to find a seat, but she was as overwhelmed as I. A woman approached, introduced herself as Tracy and offered help, which I accepted.

She took my arm in the hold you are taught for drunk people so they can’t escape. I was dragged to a chair, but I let it go. Later I realized there was someone’s jacket on the chair, meaning I’d taken someone’s seat. I let that go too.

The woman who had helped me was the M.C and immediately prior to concluding the ceremony, she said something like, “There’s this young woman who I see in Hillcrest all the time.” She kept going and it finally dawned on me that she was referring to me. I put my head down and began shaking it no rather emphatically. It didn’t help.

“I’m coming toward you, dear. What’s your name?”

I answered.

“Now I want someone to volunteer to help this nice young woman get some cake.” She didn’t stop until someone volunteered.

 

Thing Four

 

I fled the room, hid out in the bathroom and then took my dog outside to relieve herself. I was headed back inside, reaching for the right door handle, when someone came out the left door. Fast. I was hit in the head. Camille let out two yelps.

Commotion ensued with ice bags and emergency room nurses coming to check us out and people and more people and orders not to take the bus home and….. I handled part of it badly. Eventually, someone I knew gave me a ride home. Camille wound up at the vet, needed X-rays and was restricted to light duty until the bruise she sustained healed.

 

Thing Five

 

By this point in my week, I needed some fun. With enthusiasm, I went to my first in-the-theatre described movie. We got my headset from Guest Services — my specific request for “the one for blind people.” It didn’t provide descriptions and my companion finally left the movie and went back to Guest Services where she acquired the proper headset. (I’d been given the one for Hard of Hearing folks.)

 

Thing Six

 

Finally, and most amusingly, dinner. I ordered a salad with peaches and caramelized onions. About two thirds of the way through my meal, I asked my friend, “Where are the peaches?”

“There aren’t any,” she said, baffled.

“Maybe these shriveled up things?”

“Those are cranberries.”

I tasted one. They were.

We asked our server and he came back saying I’d gotten the right salad just without peaches and he brought me a bowl of them.

I said to him, “This is one of those things that happens to blind people. I just assumed the peaches were somewhere on the plate but I hadn’t found them yet.”

I thought that was funny, and my friend was certainly amused. The server -– poor man –didn’t get it.

Riding The Bus With My Dog

Ever wonder why bus drivers need to announce *every* stop? Here’s a great example.

To conserve energy so I could attend a yoga class, I decided to take a bus one way to the vet’s office. As usual, while swiping my bus card I told the driver my destination. After sitting down, I pulled out my phone to monitor the street numbers as they passed. My first mistake was in putting the phone away just before my destination.

The driver did announce all the stops, which had me convinced she would also indicate the one I needed, even if she forgot I wanted it. That was my second mistake.

She didn’t announce my stop nor did she stop. When she announced the stop after mine, I called to her, “I wanted 39th?” I think her response was simply saying she’d gone past.

When I got off, I inquired, “How many streets back is the stop I wanted?”

“You should cross the street and take the other bus back,” she replied.

“Don’t have time. Do you know how many?”

“Two or three maybe. Sorry,” was her answer, with the apology covering either her lack of knowing or her mistake or both.

Armed with this wealth of information, Camille and I began walking. About the time I reached the second intersection, it dawned upon me that I would need to cross either on or off ramps for a highway. Having never done that in my entire life, I was a bit…. concerned. With a crosswalk and light, it was probably one of the safer ways to cross an off ramp, but without an audible signal, it was still daunting. I spent a long time listening to the traffic pattern trying to figure out how you timed things.

I have to say that my little black dog was awesome. I might have been flipping out, but she was a total pro.

And then we had to do it again on the other side of the overpass.

Bus drivers are suppose to announce *all* stops whether they pull up to take on or disgorge passengers precisely so that blind people can get off where they wish. This driver’s mistake put me in a pretty unhappy situation only mitigated by the fact that my dog is good at her job.

Ears

I welcomed the new year in with double ear infections – both sides, inner and outer. First, in defense of infants the world over, I have only felt that intensity of pain once before when my appendix was about to rupture. The ear pain had me curled in a ball on my living room rug at 2:00am begging the universe to make it stop. Sobbing. Loudly. Babies, in my opinion, should scream louder.

Along with the pain, I lost significant amounts of my ability to hear. I could hear someone on the other end of the phone, but not someone standing next to me. I stopped being able to perceive the noise of my fridge for about three weeks. I was unable to walk in a straight line inside my own home. I couldn’t hear if the pot of water on the stove was boiling or not.

As you might imagine, this was a life complication. Once the pain was under control, it took about 48 hours for my brain to say, “Hey, we can navigate the outside world. Camille’s good at her job. You should be able to hear audible crosswalks. AS long as you only go to places you know…..” Around then, I stood up and the room started spinning. “Okay, maybe not if I’m experiencing vertigo.”

Once the dizziness passed, that’s exactly what I did – went out and navigated familiar places while my hearing was limited. I’m still stunned at myself. Not amazed. Stunned.

What attitude or approach achieved this … result? This is a new adventure. Wonder what it will be like. Wonder what I’ll learn.

I credit this mindset to my December reading of Crashing Through written by Robert Kurson telling the real life story of Mike May’s adventures in going from totally to legally blind. Perfectly content as a blind man, he was presented with the unexpected possibility of regaining vision with a new medical procedure. The book chronicles his decision and subsequent experiences.

To boil it all down, he did it to – excuse the pun – see what it would be like. I was presented with a perceptual change and decided to embrace it as an experience. It went well.

two months later, I have most of my hearing back, but they aren’t sure everything will return. The nuanced auditory input I use for things like “Where did that thing land when I dropped it?” is effected along with trouble discerning traffic patterns, identifying the location of an open doorway and a few other things.

I’m pretty much done sucking all the learning and experiencing out of this adventure. Fingers crossed that the steroids work.