PTSD. Again.

In mid November 2013, I stopped writing in this blog. I had another traumatizing experience during a medical procedure and was unable to function normally let alone write anything that touched upon emotions. Coming back to this blog was prompted by a need to learn how to use WordPress on my iPad for the Braille Institute class. Then Braille Institute decided to establish a name badge policy and outrage worked as an awesome motivator.

Now it is time to write about what happened. As you read my recollections, please keep in mind that trauma is often stored in our brains not as narrative memory but as snapshots leading to disjointed recall.

I woke up from a trachea stretch with a tube keeping me from speaking and unable to move properly. There was a lot of chaos around me with people saying thins like, “Jen, squeeze my hand.” Nobody said things like, “Jen, I’m <insert name> and I’m going to do this.” Nobody appeared to be focused on keeping me informed of events or trying to establish a line of communication.

The tube came out quickly. The inability to move properly resolved itself. The damage was already done in the moment when I came to consciousness and couldn’t move, speak or understand what was happening, isolated in a scene of chaos. More trauma came as I learned that the situation might have been avoidable if better choices had been made by some of the clinicians involved.

Upon arriving home, I knew I would have some sort of reaction to my experience, but I wasn’t quite sure what. It took about twenty-four hours before the first signs became obvious. I walked across my kitchen and set the toaster oven tray in the sink. Then I crumpled to the ground in a ball and sobbed. There was literally absolutely no immediate cause for the tears. They just happened.

The uncontrollable sobbing became my life with tears unpredictably surfacing one to three times a day. I could be reading a book or chatting on the phone or sitting in a meeting and tears happened sort of like a sneeze – there are things you know will cause it, ways to possibly delay it, but sooner or later, it bursts forth.

Eventually I learned those delaying tactics, making being out in public somewhat more possible. Sometimes I was even able to identify what caused the tears and what emotions I was feeling. Once in a while it was even related to immediate events and not past trauma.

There is something unique about re-traumatization – having experienced trauma, developed PTSD and been successfully treated only to endure a situation similar enough to be the equivalent. then you are coping with PTSD from the recent trauma along with PTSD from your history of similar trauma. In some ways it is like light reflected between a multitude of mirrors so that the intensity of light is greater than any component part. It’s wildly exponential math. It’s emotion magnified, refracted, blenderized and placed in a pressure cooker with a faulty valve.

My entire life ground to a screeching halt. I gave up any notion of doing anything more than going to therapy, walking the dog and making sure we both ate and slept. I did things requiring use of my hands – sewing, baking, knitting – to fill my mind with something because it left less space for trauma. I didn’t visit my family for the holidays. I only talked to people who didn’t make me more upset. I kept asking for topics of conversation to be dropped before I lost it. Again.

Time passed and I was able to control enough of what was happening to begin tentatively living. Then, I knew another trachea stretch was on the immediate horizon because that’s how my stenosis works.

Part of my PTSD symptomology is that I cave in front of anyone I see as an authority figure or more of an expert in a field. Talking to doctors was harder than… crossing an eight-lane highway without a cane, dog or even audible traffic signals. I did it badly. I somehow got through it.

This time, the procedure went smoothly. With a positive experience the most recent in my memory, my life has settled down. I have been able to resume my regularly scheduled existence, just with way more therapy and a conscious commitment to real down time.

Here’s the interesting part. I’m being put back together in better shape than I was before November 15, 2013. I’m not doing it consciously, but I see things happening inside myself that I know will lead to a stronger me. I’m still having trouble wrapping my head around that.

 

Public Property

Pregnant women often speak about total strangers asking to touch their bellies.  The social mores that keep people from requesting contact with the body of someone they do not know suddenly vanish in the face of that rounded mound of baby.  Even worse, a significant number of people don’t even request permission before giving a rub.  I cannot come up with another situation, except maybe when it comes to “directing” a blind person, in which respect for bodily personal boundaries is ignored.  Even when an individual in a crowd simply brushes up against a stranger accidentally, they apologize.

This behavioral anomally around pregnant women has been framed in terms of the woman’s belly becoming public property – as if everyone has the right to touch it the way they would a soft blanket on display at a department store.  Attempting to explain a specific behavioral tendency that currently has me annoyed, I reached for an example my therapist might understand and came up with that of pregnant women’s bellies.  Aspects of my life are being treated as public property.

Approaching a bus stop where I was to wait for a friend, I was asked by a man if he could pet my dog.  I said no explaining that while wearing the harness, she was working.  Apparently, he didn’t like my answer because a tirade ensued.

 

He started with the point that one little pet wasn’t going to be a problem.  I disagreed.  He then said I was being cruel and was I afraid my dog would hurt him?  I tried giving the complicated explanation about distractions and my safety.  He said if my dog was that badly behaved, she wasn’t trained well.  Was I just not training my dog properly?

 

I admit snapping at that point and saying something about having a dog previously that was highly distractible leading to me getting my nose broken.  That did not penetrate his skull.

 

About then, my friend’s “Just walk away.  He’s nuts>” penetrated and I tried leaving.  Really, I tried.

 

I had to turn back when he told me I should “Just stay home.”  Excuse me?  I don’t think so.

 

Let’s just say it went south from there and he was really insulting.

 

My point?  This man treated me, my dog and my life as though he had a right to comment upon them.  Everything about me had suddenly become public property.  I was the politician whose life is open to public scrutiny.  I was the actor living in the public eye.  I was just lacking any of the compensatory perks either of those roles supposedly bestows.

 

The worst part?  People stood there watching and did nothing.  Nobody said, “Hey, man, it’s her dog.  Leave her alone.”  In their silence, they were condoning his behavior.

 

To paraphrase a mother-to-be’s comment, “It’s my dog.  Keep your hands off!”  And, I would add, your opinions to yourself.

 

 

The Culture of Silence

A friend used the phrase ‘a culture of silence’ to refer to the normative standards of behavior, cultural beliefs, individual attitudes, social structures, and societal barriers that dissuade marginalized people from sharing their experience. Women keep quiet about sexual assault to avoid the blame and shame attached to speaking up. Transgendered people don’t discuss their gender identity out of fear, at best, of being labeled “freaks.” Poor people stay silent about their impoverished state so as to not be labeled a slacker, told they should just go find a job, or be pitied.

 
In contemplating all the times I swallow my words, I have begun to wonder what part of my silence is tact and what part subtle duress?
Then I came across a news clip about a student with developmental disabilities who was bullied by her teacher.
Watch here.
What shocked me was not that such events transpired for I know such situations are common. I was surprised that the parents went to such great lengths to prove their child was not lying. Educators relied upon the culture of silence to protect them, but it didn’t work. Thank goodness it didn’t work.